Today has been a good day! (ish)
I’m feeling much less fatigued today which is amazing. On the tired scale, I’d say I’m at a 5/10 compared to a 10/10 that I’ve been experiencing lately.
I had the day off today and so spent most of it out with my mum. She’s self employed and so I’m really lucky that I get to spend time with her. She’s also my carer but it’s great doing normal things instead of patient/carer things!
I’d be curious to hear how you guys handle daily life? Do you have people around to help with things? Leave a comment below if you want to share.
Also, visit http://www.sickoflupus.co.uk for more advice about dealing with Lupus.
Around midday, we went for lunch and did a bit of shopping. I say shopping but I don’t really enjoy shopping for various reasons. Firstly, I’m much larger than I was pre medication and I battle with that. Secondly, it’s so tiring and it’s a lot of walking! (statements like this, I never thought I’d say! I used to LOVE shopping and LOVE walking but these are high energy activities nowadays)
I laughed a lot today and laughter is so therapeutic. With chronic illness you can be very up and down. I try to be a happy and optimistic person and I also keep a lot to myself so even if I’m depressed, I keep that in. It’s such a relief when you are genuinely happy and not just putting on a brave face.
We went home a couple hours later and it’s a relief to go out with people who understand your limits. I often use the sand in an hourglass as a metaphor. Basically, once I decide to start an activity, I turn the hourglass and I’m on a time limit. Once the sand runs out, I’m done. There isn’t a reserve stash. That’s it. Sorry.
On the rare occasion that I feel up to doing more, I can choose to turn it over again. Hope that makes sense?!
I do love a good metaphor!
I really hope you are enjoying these diary entries. As I said before, I’m writing each day during Lupus Awareness Month because a day in the life of a Lupie is always different to the next. If there is anything you’d like me to talk about, please feel free to ask in the comments below/comment on twitter or the Facebook page.
I’ve stopped trying to predict how I’ll be feeling from day to day but it would be lovely to have another bearable day tomorrow. Here’s hoping!
Thanks again for reading.