Blog’s 1st Birthday & A Very BIG Thankyou! 

http://www.sickoflupus.co.uk 

Hello all! 

   
I just wanted to say a very big Thankyou for supporting the Sick of Lupus blog for an entire year!

The blog was created to coincide with Lupus Awareness Month 2014 (UK). I wanted to do my bit to help spread awareness and to show the different aspects of life with chronic illness. After reading so many amazing messages from you all, I decided to carry on posting to my little space on the Internet,and  thanks to WordPress stats, I can share with you just how far the blog has travelled!

 

It’s crazy to think that my ramblings have gone global! We really are a community, even if we don’t know one another personally. When I’m writing, I literally feel like I’m writing to friends and I always know that someone, somewhere can relate. 

So where are you from? I’d love to know! Tweet sickoflupus or comment below to let me know!

Finally, when I first started writing, I wanted to be anonomous because I thought it would help me to be more honest. From the website to Facebook and Twitter, Sickoflupus is a team effort but I personally write these blogs. 

I think it’s high time that I introduce myself! Better late than never eh?!

So, hi! I’m Shari and its very lovely to meet you! ⤵️ this is me ⤵️

   
 
So once again, I’ll be posting for the duration of Lupus Awareness Month. I’ll probably post every other day to avoid bombarding you! However, if you want me to write about anything specific, please tweet us or comment on any of our social media.Once again, 

THANKYOU!!!!!!!! 

http://www.sickoflupus.co.uk

 

On The Cusp

http://www.sickoflupus.co.uk

Hello!

It’s been a while so here I am with a new blogpost. I also wanted to say Thankyou to all of you who continue to check back on the archived posts, it’s amazing to see that people are still reading. 

This is a super quick, blogpost about what’s been occupying my mind a lot lately. It’s probably only a 90 second read but I wanted to share. 

Today I’m writing about how when you’re living with chronic illness, you often feel like you’re on the cusp of something happening – either a flare or a respite. 
I feel like I’ve been living in this limbo for around 6 weeks now and it’s the most frustrating thing! 
As I’ve mentioned before, I feel like I’ve taken control of my mental and emotional health since starting a course of antidepressants. It’s no secret, I’m not ashamed to say that I’m heavily reliant on citalopram because it’s literally given me my life back. However, my pain, fatigue and nocturnal psychois still plagues me daily. 
With my anxiety and depression currently under control, I’ve seen my life begin to change in ways that I didn’t anticipate. For the first time ever, I feel like I have direction and a clear focus regarding my career and where I want to go with it. I feel like a have solid plans, exciting goals and I have an amazing support system. However, I just can’t shake this feeling that something might go wrong. 

So what do you do with that? Do you keep going and hope that you don’t suffer a flare or do you place your life on hold, just incase? How do you balance listening to you body but also not letting lupus affect your life? 

This is something that definitely reminds me that lupus is real and lupus is serious. It’s the reason that I/we don’t lead a ‘normal’ life. We just don’t have the control that others take for granted. 

It’s the not knowing that bothers me so much. ‘Healthy’ people could argue that none can control things 100% but I don’t want to hear that response. Healthy people don’t have pain, fatigue, medication, disability or illness related anxiety to deal with on a daily basis. Most people don’t avoid making long term plans just incase they don’t feel well. They don’t have this mindset, they don’t live with such caution.

I’m going to have to get back to you about what this turns into. However, believe me, I will claw onto the little independence I have because I know a better life exists beyond my illness. 

Please leave your thoughts, comments and questions below or on the Sick of Lupus Facebook page. 

See you soon XOXO

http://www.sickoflupus.co.uk