Wouldn’t it be great of you could take a holiday and leave your mind behind? Just a thought.
I’ve been blogging for 3 weeks now and I can’t decide if it’s gone quickly or slowly? I’ve never documented my life before and certainly haven’t shared so much of myself. It’s been both liberating and scary! I hope you’ve found some help/common ground/inspiration if you’re going through illness or if you’re reading to gain a better understanding because you know someone with Lupus.
I’ve not had too much pain today, just the usual episode of chest pain. I slept in quite late today and I could easily go to bed now.
I was up late last night because I went to see a show and had the best time! I did it like disabled person though and used the live access system. Because I’m unable to stand for too long, we chose seated tickets but in the area set aside for wheelchairs etc. I’ve had to do this a lot if I plan to see a concert or a show because often I book so far in advance, I can’t predict how I’ll be feeling. It just made the whole experience so much easier and we could relax and enjoy the show.
I think it’s been a over a year since I saw live music. It’s one of my favourite things to do. It’s escapism at it’s best.
Year’s ago when my Lupus was less active, I used to go to so many concerts. I remember queuing for about 7 hours to see Madonna because I wanted to be close to the stage then stand for 3 hours for the show. That ship has sailed.
I’ve been feeling quite low today and I think it’s because I had such a great time last night but this morning it was back to reality. I’ve got the rest of the month off and so the sensible thing to do is to get lots of rest. I appreciate that I’ve got this time but I’m already feeling restless and bored. Boredom fuels frustration and I then become angry. I’ve definitely felt angry today and I don’t feel anyone around me quite understands.
I’m noticing a slow slide back into depression so I’m trying really hard to cling onto happier thoughts. I have a rheumatology appointment soon and I’m anxious about it. We’ll be looking at new treatments and a game plan for 2015. These appointments make things seem very real and I find it really frightening. For this reason, I think the moodiness is justified. #LupusSucks
Til next time, X